Neurofibromatosis is a genetic disorder that causes tumors to form on nerve tissue. These tumors can develop anywhere in your nervous system, including your brain, spinal cord and nerves. Neurofibromatosis is usually diagnosed in childhood or early adulthood.
Nerve Tumours UK provides support and information fir people in the UK who have Neurofibromatosis (NF1 and NF2). They work tirelessly to improve the lives of people with nerve tumours, by making sure those affected have access to the help they require.
The NHS website provides you with free articles, videos, tools and advice to help you make the best choices in adapting to life in Neurofibromatosis.
The Brain Charity offers emotional support, practical help and social activities to anyone with a neurological condition and to their family, friends, and carers.